“What exactly is wrong with you?” is a question I’ve heard a
lot over the last five months, whether it be from friends, teachers or doctors
I always feel like that is a question that no one really wants to know the full
answer to. What people really want you to say is that you are fine, thanks for
asking now I can go back to not really speaking to you again for the next six
months- but in case anyone does have a genuine interest about what really is
wrong with me then this blog post should answer some questions. I’m not writing
this for pity or sympathy but more to document for myself, maybe in some way
writing this down will make all the jumbled up thoughts in my head easier to
think about. Another thing before I get down to it, is that this post won’t be
focusing on mental health, I’ve already said everything I want to say on that
subject and I don’t feel the need to go into gory details to everyone, although
undoubtedly some details will be
mentioned as part of my overall explanation.
Frustratingly, I cannot really begin to tackle the question
in the title with nearly as much clarity as I would like too, this is somewhat
because since taking a break from college my mind has turned into a mushy mess
but is mostly due to the fact that I don’t really know yet what is wrong with
me. In the past six months I have probably visited my GP surgery at least
fifteen times but have really only been
given any help in around two or three of those appointments. Every time I went to the doctors, full of
nerves about what state I was in, panicking about what would happen and hopeful
about what help I would finally be offered, I was met with the same detached,
disinterested reaction from Doctors who seem so used to seeing people with the
common cold that they have turned completely bored and ambivalent to their
entire job. Many times I have been met with the statement of “Yes these are
very serious symptoms but you are only eighteen so it probably doesn’t mean
anything”, this was without any further investigating or offers of medication.
Anyone who says the NHS is a breeding ground for an over caring culture and
hands out drugs too easily has obviously never actually tried to get medication
on the NHS- a system which is ultimately so threatened by its lack of profit
that it forgets that it is not a business and should actually be caring for people. Thus, very little was done by doctors for a
long time for me, I wish I could say
that this only had a physical effect but ultimately it has left me discouraged
and tempted to give up on myself.
Once my doctor did finally remove their glasses which are
fogged up with the smog of their own self-satisfaction and over inflated egos I
was finally given at least some kind of help, not a diagnosis exactly but help
nonetheless. Firstly, I am now the taker
of 80mg of propanol (a beta blocker) a day, if you aren’t aware of the side
effects of beta blockers I will just briefly mention they can cause low blood
pressure, cold hands and feet and impotence, needless to say they are a
charming creation. To many it may seem illogical that I was given medication
before actually being examined at all but this isn’t so much the case. I have
visited A&E and my Doctors a number of times for an ECG and had a couple of
very simple physical tests carried out that exclude the possibility that I am
having a massive heart attack right at this very moment. Also to be referred
onto a cardiologist you firstly have to be trialled on beta blockers to see if
they ease the problem as they can be used to tackle anxiety, migraines and
chest pain and are normally the first port of call for any heart or chest pain.
In an ideal world I would prefer to be checked over and not live everyday
unable to walk the stairs or a slight hill but I’m aware that there are people
out there with very serious issues which should come above my problems, which
although uncomfortable aren’t killing me. Essentially, over exercising and
under eating (told you I would have to throw in a bit of mental health) are
quite likely to affect your physical stamina, so I am yet to see whether the
feeling that my chest is going to explode is related to any mental illnesses or
is something more serious.
Next on the long list of health issues I seem to have accumulated
is a high level of bilirubin in my system, which basically means my liver isn’t
working as well as it should be. Bilirubin
is an orange-yellow part of bile. Bile is the bright green fluid secreted by
the liver to help digestion. Bilirubin
is mainly formed by the normal breakdown of haemoglobin. Bilirubin normally
passes through the liver; it is then excreted as bile through the intestines. When
this process is interrupted, excess bilirubin stains other body tissues yellow.
Essentially the only noticeable side effect of this is that my eyes and skin
tone have taken on a strange yellow tinge, meaning I do look a little bit like
a jaundice baby/ somebody with an olive skin tone about to vomit. This is
another health issue that is linked to my various eating issues and will
probably correct itself over time as my body begins to get healthier and is no
longer fearful that it will be put into starvation ever again. This is probably
the least painful and troublesome of everything really, in fact until the
clinic I visit requested I had another blood test I didn’t realise there was
really anything wrong with my liver at all, although this is at least partly
due my doctor “forgetting” to mention that test result to me. It does at least
explain my extreme fatigue however which is a side effect of having high bilirubin
levels. I challenge anybody to be able to sleep more than I do, when I was
younger I was an extreme insomniac, often having as little as three hours sleep
before doing a full day at school. Now however, I sleep all the time and I mean
all the time. I can easily get a good
ten hours sleep at night and wake up in the morning feeling exhausted, needing
a nap again before 10 am, later needing another nap by around mid-afternoon and
STILL managing to be exhausted again by nine at night. It frustrates me when I
am accused of being lazy, or not trying to get on with my life, I would absolutely
love to be able to have a part time job or go shopping but at the moment a
short walk is enough to wipe me out for a week, so working for more than about
ten minutes isn’t going to happen.
Now on to the crème de la crème of my ill health, the
condition which has been the cherry on top of a fairly awful year. One day I
was sat revising politics on my bed whilst watching Bargain Hunt and I suddenly
got the most crippling pain of my entire life shooting through my teeth and
jaw. This pain is not comparable to tooth ache, I cannot begin to get across
how awful it feels, the easiest way to describe it is to say that it feels like
an electric nail gun is shooting nails into my face which are then causing an
electric shock throughout my face. When I first got this pain I tried biting on
something, pouring water on my teeth- anything to reduce the feeling I was
trying to cope with, but nothing could touch it, it is the kind of pain that
leaves me exhausted for weeks, unable to contemplate leaving the house and the
illness which ultimately prevented me from sitting my A Levels. I cannot
possibly leave you with an image of how completely destructive this pain has
been in my life, it makes me want to rip apart my jaw, and leaves me screaming
and crying on the floor. This pain went away for a few months and has come back
with a vengeance in the last few weeks, no painkillers ease it not even my
StepFather’s Tramadol which is enough to drug a group of cattle. It is thought that I may have a condition
called trigeminal neuralgia which is known as the “suicide condition” because
it so painful that people suffering with it would do anything to escape. The pain is often described as an excruciating
sensation, similar to an electric shock. The attacks can be so severe that you
are unable to do anything during them, and the pain can sometimes bring you to
your knees. After the main, severe pain has subsided, you may experience a
slight ache or burning feeling. There may also be a constant throbbing, aching
or burning sensation between attacks. I
have been prescribed a medication which is meant to calm the nerves although
this has had little effect. This pain has left me concerned about the prospect
of ever living a “normal” life again, it can be triggered by a sensation as
light as wind blowing against your cheek. I cannot imagine how I would cope if
I had an attack in public, or in an exam, it is something which is still fairly
unsolved.
So, there we have it, if that hasn’t left you feeling
depressed I don’t know what will, although I really don’t mean this post to be
negative, I just want some closure on a very confusing time in my life.
Although being ill for a long time has had a negative effect upon a lot of my
life it has also had a positive effect upon my outlook on life. Before I had
these issues I would cry if I got a B in an exam, I remember thinking my world
would end when I got a B in my first AS Level exam in History. Now at least I
know that the world doesn’t really hinge upon grade boundaries, or who kisses
who. Obviously these things are important but the most important thing in life
is that you are healthy enough to enjoy it. Being “perfect” academically or aesthetically
shouldn’t be more important to you than being alive.
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